CREW GOES HOME

Late this afternoon this came across my screen.....

        Crew is going HOME !!

Marie and I had talked last night and I knew the doctors were considering it.  They had really wanted him to stay another four weeks while the cast was on, but agreed to give it a try with a Home Health nurse.

 

I have not talked to her to know what the deciding factor was...though she did send me a text and say I could be his Grammy too.....It would be my honor.  As you can see I have fallen in love with this little guy that has some huge mountains to climb.

So tonight this would be the prayer request.....that Marie would get some sleep in her own bed, that Crew would be comfortable ( I don't see how) and not in pain and that JUST

 the right nurse would be found to help them care for him. Print his picture and put in on your fridge as a reminder to pray.  He has a long hard journey ahead. 

GOOD NEWS FOR A CHANGE

HAPPY TWO MONTH BIRTHDAY TO CREW!!!!!!!


GOOD NEWS IN THAT HE HAD A GOOD DAY!!!  MARIE EVEN GOT TO PULL HIM IN A WAGON OUTSIDE PULLING ALL HIS POLES AND TUBES ALONG.  HE ALSO REQUIRED LESS PAIN MEDS TODAY. 

JUST WANTED TO SHARE A LITTLE GOOD NEWS FOR A CHANGE.

       THAT HAS TO MAKE YOU SMILE...

CATCHING UP

I am so sorry I have missed a couple of days.  I had thought
that even though I was working the Junior League show, I would have time to put together a short post at night. I feel like I left you all hanging on Crew. 
The last couple of  nights I have come home too tired to think muck less write a sentence, plus I did not know much.  It has been a week of 2 more surgeries  for the little man. 

 Instead of hearing my words tonight I am just going to share some snippets of notes I received from Marie and her dear Mom, Bonnie. 
 I can tell you each time I get one I want to drop to my knees and ask God why. 
Why a little 7 week old boy has gone through so much? Why the immense suffering? 
Why not a break?  I don’t know the answers but I know I will keep praying, keep encouraging them, and keep loving on them.   
Crew is fighting  3 infections that are not responding great.  His skin is breaking down, most of the time he is heavily sedated…I could go on and on but you get the picture.  Here are some words from their hearts.

Wednesday from Marie

Teresa, 
His main surgeon who specializes in what Crew has, has really gotten attached to him during his short little life! He has been with him as much as me! After surgery today he teared up twice out of sympathy for Crew with genuine worry about his future.
He said Crew has taken 10 years off his life from worrying everyday. He said he isn't letting him go until he KNOWS (as good as he can) that Crew is ok for now and that I feel capable of caring for yet another thing, an open wound.

I cried with him feeling defeated, exhausted, and so much sadness for this tiny baby who has literally been through hell.
All he does is fight and his body can't fight everything all day everyday. So if he can do it, so can we!

Apparently God keeps swooping in and showing everyone that Crew is his, and is going to do amazing things.
 Crew shouldn't even be here...doctors told me after my ectopic pregnancy it would be nothing short of a miracle to have a baby.
They removed a tube and ovary, and said my other side was damaged. I was devastated! Even my sister with her OBGYN nurse skills was broken hearted for me every month we tried and failed.
She said think about adoption.
I begged for fertility treatments and they kept saying you can take every drug there is and it's not going to work. So to satisfy me, they gave me some, the night before I was going to start the treatments, Clennton said your face looks different.
You look pregnant. In my anger rage at him for saying something like that to me, because I wanted it so bad, I went to Wal-Mart at midnight to prove him wrong, again.
45 min. Later I was screaming.... I was pregnant. I called Rhonda and screamed, she begged me to go get more tests and don't get to excited yet. I bought 5! All positive! I was possibly the happiest person on the planet. I called my doctor and he couldn't believe it.
Then began my high risk pregnancy. Lots of tests, ultrasounds, preterm labor scares, I didn't care. I was having a baby. Against all odds. Then began his journey on earth, where a few times he shouldn't have made it.

He did. We did. God is using our boy to spread the word of faith, prayer, healing, and love.

What an honor! Whatever happens from today on, is a blessing and a miracle. I'm blessed everyday I get to be his mother. He reached a place in my soul that I didn't even know was possible. I couldn't be more proud of my tiny fighter...

Now if you made it through that one in one piece you know the strength of this young Mom!

Another note from Marie

Crew just got taken back to be put to sleep for the third time in 7 weeks to have his PICC line placed.
Pray for him please and me.... I'm running on fumes and tears....

And then another note

Crew is sleeping peacefully right now. His PICC line is placed, they are having a hard time fighting all 3 infections without damaging his kidneys more.
2 of the bacteria are     
Strong and resistant and require IV antibiotics.
He is still very uncomfortable and still on lots of pain meds. His blood pressure is still high and requiring medication.
The tube in his belly is not draining like it needs to, so later they will manipulate it and try to make it drain so his hole in the bladder can heal.
Thanks for all the prayers....

Then a text I received from her Mom last night

Crew has been awake some today and looked around.  (he loves to look at Bob (her husband)
It made me cry to see him awake and peaceful.  I have not seen that before. Thank you for checking on us.  Some of your precious blog friends have emailed me. I feel the hugs ….
Bonnie

So you can see your prayers and notes have blessed this family.  I am a mess from just writing this.

I so want them to get a break…
a good nights sleep, a pain free day, a bucket of HOPE, a cup of MERCY, a day they can spend with their other children, a smile from Crew, a smile from the doctor meaning the infections are gone….a worry free day, 100 encouraging words, and hugs at every turn.   

 Please HOPE and PRAY with me. 

I will be back with another post in a few days with another post that I have debated about posting…
A Miracle Story! 
Have a great Sunday……Teresa